WEBVTT 0:00:03.273 --> 0:00:05.873 When Liz was born, 0:00:06.243 --> 0:00:07.860 it was like what the heck? 0:00:08.425 --> 0:00:10.466 This can't be happening. 0:00:10.673 --> 0:00:13.421 I was just, just devastated. 0:00:13.491 --> 0:00:15.623 We were going to the birthing room and 0:00:15.870 --> 0:00:18.533 everything was just going to be so peachy and wonderful 0:00:18.608 --> 0:00:20.626 because we were going to do all this natural childbirth stuff. 0:00:20.698 --> 0:00:23.500 And, and then she turned out to be breech, 0:00:23.575 --> 0:00:26.480 and when they did the x-ray, there was a lot of 0:00:26.673 --> 0:00:28.723 Oh, my gosh from the nurses 0:00:28.796 --> 0:00:30.811 and so I knew a lot was going on. 0:00:30.891 --> 0:00:32.275 I walked through the doors. 0:00:32.350 --> 0:00:35.605 They pushed the bassinet with Elizabeth in front of us. 0:00:35.675 --> 0:00:38.340 It was the most powerful moment of my life. 0:00:38.505 --> 0:00:40.488 I mean it was instant love like that. 0:00:40.638 --> 0:00:42.266 Then my husband came in 0:00:42.341 --> 0:00:44.765 and talked about how beautiful she was 0:00:44.838 --> 0:00:46.300 and how she looked just like him 0:00:46.373 --> 0:00:48.233 and how excited he was to have to her. 0:00:48.305 --> 0:00:49.511 It just totally, 0:00:49.608 --> 0:00:52.300 it was like this turmoil of negativity, 0:00:52.381 --> 0:00:53.611 but yet he's happy and it's like 0:00:53.683 --> 0:00:55.313 Well, I should be happy too. 0:00:55.440 --> 0:00:57.331 But I';m so worried about this baby 0:00:57.403 --> 0:00:59.400 an whether or not this baby is going to survive. 0:00:59.485 --> 0:01:00.521 We didn';t know that she was going to have 0:01:00.595 --> 0:01:02.083 developmental disabilities at the time 0:01:02.173 --> 0:01:04.160 and we thought, we were hoping that she didn';t. 0:01:04.340 --> 0:01:06.943 But, nonetheless, we just planned 0:01:07.035 --> 0:01:08.733 that she would live to her maximal potential, 0:01:08.805 --> 0:01:09.496 whatever that would be. 0:01:09.570 --> 0:01:12.086 whatever that would be. 0:01:12.205 --> 0:01:14.271 you know, very devastated 0:01:14.341 --> 0:01:16.033 to that reality of 0:01:16.115 --> 0:01:17.813 we have this baby girl 0:01:17.915 --> 0:01:20.128 that';s adorable and happy and 0:01:20.441 --> 0:01:21.500 pretty easygoing 0:01:21.571 --> 0:01:23.633 that';s surviving some pretty challenging 0:01:23.708 --> 0:01:26.333 therapies and surgeries, 0:01:26.413 --> 0:01:28.743 and now going into school 0:01:28.810 --> 0:01:31.668 and now looking at what education is, 0:01:31.740 --> 0:01:33.735 which is planning for your future, 0:01:33.808 --> 0:01:36.130 and then actually realizing that she is 0:01:36.206 --> 0:01:37.600 competent and has skills. 0:01:37.666 --> 0:01:39.033 We started learning about inclusion 0:01:39.106 --> 0:01:40.678 when she was like 4 years old. 0:01:40.775 --> 0:01:42.166 We always wanted her included. 0:01:42.243 --> 0:01:43.838 We wanted her to achieve goals. 0:01:43.906 --> 0:01:46.755 We wanted her to learn to be socially appropriate 0:01:46.828 --> 0:01:48.766 and just treated like everyone else. 0:01:48.838 --> 0:01:53.016 What we learned was that students thrived, 0:01:53.238 --> 0:01:55.683 that the community became accepting, 0:01:55.771 --> 0:01:59.883 that it opened doors for her as an adult 0:01:59.958 --> 0:02:01.743 because it would be relationships 0:02:01.815 --> 0:02:03.900 that would build upon her skills and 0:02:03.975 --> 0:02:05.768 her abilities and her acceptance. 0:02:05.841 --> 0:02:07.671 Liz is 31 years old. 0:02:07.803 --> 0:02:09.800 She has been living on her own for about 5 years. 0:02:09.885 --> 0:02:14.045 Elizabeth is the owner of this condo that we';re at, 0:02:14.225 --> 0:02:16.255 and I take care of her. 0:02:16.340 --> 0:02:18.155 Liz has always had full time aide. 0:02:18.225 --> 0:02:20.023 Liz needs a lot of support, 0:02:20.095 --> 0:02:22.166 so she';s always has what';s called a 0:02:22.240 --> 0:02:24.766 para pro in the special ed programs 0:02:24.843 --> 0:02:26.100 It';s almost like a sister bond 0:02:26.178 --> 0:02:27.615 because I';ve been with her for so long. 0:02:27.815 --> 0:02:28.900 A lot of people think that… 0:02:28.973 --> 0:02:30.300 It';s like, No, we fight all the time. 0:02:30.380 --> 0:02:32.433 I';m like sometimes she gets mad when I watch too much 0:02:32.503 --> 0:02:34.325 music videos or when I watch a movie 0:02:34.420 --> 0:02:35.906 and she doesn';t want to. 0:02:36.008 --> 0:02:38.933 Anything that I would do, she would do too. 0:02:39.013 --> 0:02:41.685 We go to Panera and grab a coffee 0:02:41.753 --> 0:02:43.396 and kind of socialize over there. 0:02:43.471 --> 0:02:45.263 Go grocery shopping, 0:02:45.440 --> 0:02:46.801 getting things for the house. 0:02:46.916 --> 0:02:49.566 We go to Target, kind of see clothes 0:02:49.641 --> 0:02:52.740 We go to the mall and we hang out with friends. 0:02:53.141 --> 0:02:55.901 Have a little social gathering here. 0:02:59.786 --> 0:03:01.925 All right. Am I boring you, Liz? 0:03:02.975 --> 0:03:05.466 We';ve allowed Liz to take risks in her life. 0:03:05.538 --> 0:03:07.978 And because of those risks she';s taken, 0:03:08.371 --> 0:03:12.455 she';s done things that Chris and I will say, Wow! 0:03:12.545 --> 0:03:14.233 Liz was a child when she started, 0:03:14.303 --> 0:03:16.218 so she';s been with us many, many years. 0:03:16.291 --> 0:03:19.431 The benefits are huge and they';re multiples. 0:03:19.503 --> 0:03:23.716 There';s exercise, recreation, social, interactive. 0:03:23.791 --> 0:03:25.038 There';s bonding. 0:03:25.113 --> 0:03:28.166 She has progressed in her riding 0:03:28.240 --> 0:03:30.491 to that she turns her horse 0:03:30.671 --> 0:03:33.000 and she signals the leader 0:03:33.071 --> 0:03:35.166 when she needs to turn, when she wants to walk on, 0:03:35.238 --> 0:03:36.561 when she wants to whoa. 0:03:36.706 --> 0:03:39.503 She';s a very opinionated young woman. 0:03:39.573 --> 0:03:40.955 She knows what she likes. 0:03:41.025 --> 0:03:42.558 She knows what she likes to do. 0:03:42.643 --> 0:03:44.721 Progressive and as open as 0:03:44.788 --> 0:03:46.786 we tried to be in our beliefs and everything, 0:03:46.975 --> 0:03:49.141 we had no idea 0:03:49.341 --> 0:03:50.601 how much she would progress. 0:03:50.673 --> 0:03:51.705 How she would grow. 0:03:51.778 --> 0:03:52.631 How she would change. 0:03:52.703 --> 0:03:54.698 She has responsibilities in the week. 0:03:54.771 --> 0:03:55.761 She has to go to work. 0:03:55.841 --> 0:03:57.335 We start off, we punch in 0:03:57.406 --> 0:03:58.938 unusually two hours a day. 0:03:59.013 --> 0:04:01.233 We really want her to be in the public';s eyes. 0:04:01.306 --> 0:04:03.300 We are in charge of pricing 0:04:03.375 --> 0:04:06.641 and returning the products that people don';t like. 0:04:06.713 --> 0:04:09.866 I make sure that she does the best of her ability. 0:04:09.940 --> 0:04:11.166 I don';t do the job for her. 0:04:11.238 --> 0:04:12.801 I just make sure that she';s there 0:04:12.875 --> 0:04:15.116 doing the best that she can do. 0:04:15.190 --> 0:04:17.500 The first thing that all parents think about, 0:04:17.570 --> 0:04:20.233 and I think particularly parents with 0:04:20.340 --> 0:04:23.503 children with disabilities, is their safety. 0:04:23.575 --> 0:04:27.508 And some parents don';t let go. 0:04:27.578 --> 0:04:28.433 That';s easy. 0:04:28.510 --> 0:04:29.400 Elizabeth doesn';t talk. 0:04:29.475 --> 0:04:30.666 I can';t let her go here. 0:04:30.738 --> 0:04:31.673 She can';t go there. 0:04:31.743 --> 0:04:32.933 What happens if she falls 0:04:33.005 --> 0:04:33.866 What happens if this happens? 0:04:33.951 --> 0:04:35.845 All those things have happened. 0:04:35.936 --> 0:04:37.933 She';s not made out of china. 0:04:38.238 --> 0:04:42.266 She';s a young woman, and she';s fine. 0:04:42.496 --> 0:04:43.833 And it all has to do with the opportunities 0:04:43.905 --> 0:04:45.766 that we';ve given her. 0:04:45.840 --> 0:04:47.400 We aren';t special people. 0:04:47.471 --> 0:04:48.633 We learned things. 0:04:48.708 --> 0:04:50.866 We took the initiative to learn, 0:04:50.945 --> 0:04:53.243 to find resources and to 0:04:53.318 --> 0:04:55.166 find opportunities for Liz, 0:04:55.241 --> 0:04:57.233 to give her experiences 0:04:57.305 --> 0:04:58.778 and to help her grow, 0:04:58.851 --> 0:05:01.243 just like you do with any child. 0:05:01.340 --> 0:05:03.226 And other parents thought that we 0:05:03.298 --> 0:05:05.085 were just bucking the system 0:05:05.161 --> 0:05:07.105 and trying to be difficult people 0:05:07.206 --> 0:05:09.623 because we wanted inclusion and we wanted 0:05:09.708 --> 0:05:11.576 her to be self-determined and 0:05:11.751 --> 0:05:13.910 and give her opportunities instead of 0:05:14.050 --> 0:05:16.741 just take of her like some poor sap. 0:05:16.811 --> 0:05:18.330 And she';s not a poor sap. 0:05:18.406 --> 0:05:20.900 She';s a person with a lot of potential and ability, 0:05:20.971 --> 0:05:24.825 and it';s paid off. 0:05:25.405 --> 0:05:42.923 Music