WEBVTT 0:00:01.200 --> 0:00:03.599 I saw a bus on the way to school 0:00:03.600 --> 0:00:06.599 I saw a bus on the way to school 0:00:06.600 --> 0:00:09.449 I saw a bus on the way to school 0:00:09.450 --> 0:00:10.749 On my way to... 0:00:10.750 --> 0:00:13.224 I.D.E.A., 0:00:13.225 --> 0:00:17.649 the Individuals with Disabilities Education Act, Part H, 0:00:17.650 --> 0:00:22.124 describes a statewide system of early intervention services 0:00:22.125 --> 0:00:26.049 for infants and toddlers with special needs. 0:00:26.050 --> 0:00:29.099 Fourteen components make up this law, 0:00:29.100 --> 0:00:32.924 components like the family service plan, 0:00:32.925 --> 0:00:36.699 child referral, and public awareness. 0:00:36.700 --> 0:00:40.624 All the components must fit together as a comprehensive system 0:00:40.625 --> 0:00:44.674 that parents and professionals who provide services to children 0:00:44.675 --> 0:00:48.924 with disabilities need to understand. 0:00:48.925 --> 0:00:53.149 Part H expert, Doris Haar, found a way to visualize 0:00:53.150 --> 0:00:55.849 how the law's many parts work together. 0:00:55.850 --> 0:00:58.974 I chose the bicycle as a complex mechanism 0:00:58.975 --> 0:01:01.724 that really visualizes for me 0:01:01.725 --> 0:01:04.524 the entire Part H program, 0:01:04.525 --> 0:01:09.449 with all its many component parts that are essential 0:01:09.450 --> 0:01:12.149 to a good, smooth-running program. 0:01:12.150 --> 0:01:14.824 Just as you can't do without a pedal on a bike, 0:01:14.825 --> 0:01:18.124 every one of the components are essential. 0:01:18.125 --> 0:01:22.849 The bicycle also represents a means of looking at 0:01:22.850 --> 0:01:27.474 what you contribute to the program as a state planner 0:01:27.475 --> 0:01:30.249 or a local planner or even as a family. 0:01:30.250 --> 0:01:32.599 What are the steps you'll have to go through 0:01:32.600 --> 0:01:36.399 in order to get to the direct services of this Part H program? 0:01:36.400 --> 0:01:42.499 [Music] 0:01:42.500 --> 0:01:46.899 The two bicycle pedals are the driving force of the system. 0:01:46.900 --> 0:01:49.824 One pedal represents the state lead agency 0:01:49.825 --> 0:01:53.274 responsible for administering Part H. 0:01:53.275 --> 0:01:57.724 The other pedal represents a state interagency coordinating council, 0:01:57.725 --> 0:02:02.574 or I.C.C., made up of individuals from many public 0:02:02.575 --> 0:02:07.574 and private agencies, and parents of eligible children. 0:02:07.575 --> 0:02:10.399 The lead agency is selected by the governor 0:02:10.400 --> 0:02:13.399 and is the agency that will best represent the interest 0:02:13.400 --> 0:02:18.874 of families with infants and toddlers who have special needs. 0:02:18.875 --> 0:02:21.449 The two pedals representing the lead agency 0:02:21.450 --> 0:02:26.724 and the I.C.C. should be well-balanced and work together. 0:02:26.725 --> 0:02:29.699 [Music] 0:02:29.700 --> 0:02:32.349 One of the first actions of these two bodies 0:02:32.350 --> 0:02:35.524 is to agree on a definition of infants and toddlers 0:02:35.525 --> 0:02:39.324 who will be eligible for early intervention services. 0:02:39.325 --> 0:02:42.274 This definition may include many infants and toddlers 0:02:42.275 --> 0:02:48.224 who not only have disabilities but are at risk for disability. 0:02:48.225 --> 0:02:52.849 Once you have defined which infants and toddlers your state will serve, 0:02:52.850 --> 0:02:55.324 the gears go into action. 0:02:55.325 --> 0:02:57.999 The front gear is public awareness. 0:02:58.000 --> 0:03:01.349 Through public awareness efforts, professionals 0:03:01.350 --> 0:03:04.124 and families must learn about this law 0:03:04.125 --> 0:03:08.474 and understand how to make referrals to the Part H system. 0:03:08.475 --> 0:03:11.874 Professionals and families identify and refer 0:03:11.875 --> 0:03:15.399 potentially eligible infants and children. 0:03:15.400 --> 0:03:17.649 The children are then evaluated, 0:03:17.650 --> 0:03:22.724 and if they are eligible, referred into the Part H program. 0:03:22.725 --> 0:03:25.449 For instance, a physician may know 0:03:25.450 --> 0:03:29.024 that a child will automatically qualify for services 0:03:29.025 --> 0:03:32.099 or the child may require multiple evaluations 0:03:32.100 --> 0:03:34.949 to determine her eligibility. 0:03:34.950 --> 0:03:40.374 The child referral, identification and evaluation process, 0:03:40.375 --> 0:03:43.924 like the bicycle chain, links the front gear, 0:03:43.925 --> 0:03:47.074 which represents professional and public awareness, 0:03:47.075 --> 0:03:51.499 with the back gear, representing the very important component, 0:03:51.500 --> 0:03:58.074 an Individualized Family Service Plan, or IFSP. 0:03:58.075 --> 0:04:03.124 The IFSP is a plan developed by professionals and families 0:04:03.125 --> 0:04:06.249 that outlines services that will be set into motion 0:04:06.250 --> 0:04:09.124 for the benefit of a family. 0:04:09.125 --> 0:04:12.749 The first step is bringing professionals and family together 0:04:12.750 --> 0:04:17.824 to develop an Individualized Family Service Plan. 0:04:17.825 --> 0:04:20.999 The IFSP is developed by a team 0:04:21.000 --> 0:04:24.574 and the family is a major team member. 0:04:24.575 --> 0:04:27.849 This mother has specific knowledge of her child's needs 0:04:27.850 --> 0:04:33.224 and gets help from the various professionals in meeting those needs. 0:04:33.225 --> 0:04:35.899 The connection between the family and services 0:04:35.900 --> 0:04:38.549 is often made by a service coordinator 0:04:38.550 --> 0:04:42.974 who brings services and families together. 0:04:42.975 --> 0:04:45.599 An important feature of Part H is 0:04:45.600 --> 0:04:49.299 that the family has control of the family service plan. 0:04:49.300 --> 0:04:51.374 [Music] 0:04:51.375 --> 0:04:55.149 The services themselves are like the bicycle's rear wheel, 0:04:55.150 --> 0:04:58.274 constantly moving the family ahead. 0:04:58.275 --> 0:05:01.499 Services may include home-based 0:05:01.500 --> 0:05:04.399 or center-based care that occurs in a setting 0:05:04.400 --> 0:05:07.699 that is natural for the child and the family. 0:05:07.700 --> 0:05:10.574 Nursing services; 0:05:10.575 --> 0:05:12.999 therapies; 0:05:13.000 --> 0:05:17.449 speech and language services. 0:05:17.450 --> 0:05:19.674 Parent support where parents, 0:05:19.675 --> 0:05:21.749 who have been through this kind of experience, 0:05:21.750 --> 0:05:25.099 are able to support other parents. 0:05:25.100 --> 0:05:28.524 Transportation. 0:05:28.525 --> 0:05:31.749 Vision services. 0:05:31.750 --> 0:05:36.349 Augmentive devices and products. 0:05:36.350 --> 0:05:41.749 States are required to compile a central directory of service resources. 0:05:41.750 --> 0:05:45.724 This is a list of all the public agencies and private businesses 0:05:45.725 --> 0:05:52.024 available to help families with eligible children. 0:05:52.025 --> 0:05:56.774 The Part H law requires that professional standards be maintained 0:05:56.775 --> 0:05:59.274 and personnel training be provided 0:05:59.275 --> 0:06:02.774 to ensure the delivery of quality services. 0:06:02.775 --> 0:06:07.449 Training assistance to professionals may include in-service training, 0:06:07.450 --> 0:06:11.374 continuing education and pre-service training. 0:06:11.375 --> 0:06:13.199 [Music] 0:06:13.200 --> 0:06:16.424 The bicycle's front wheel represents other resources 0:06:16.425 --> 0:06:18.774 that are available for families through 0:06:18.775 --> 0:06:24.299 formal and informal public and private interagency agreements. 0:06:24.300 --> 0:06:26.649 Like the legislature and the media, 0:06:26.650 --> 0:06:31.999 both can be very helpful in increasing public awareness about Part H. 0:06:32.000 --> 0:06:36.074 Programs for children with special health care needs. 0:06:36.075 --> 0:06:39.399 Mental health programs. 0:06:39.400 --> 0:06:40.924 Like the bicycle's tire, 0:06:40.925 --> 0:06:45.849 interagency agreements help families and children move ahead. 0:06:45.850 --> 0:06:48.199 [Music] 0:06:48.200 --> 0:06:51.449 Just as the distance cyclist stops and checks her map 0:06:51.450 --> 0:06:55.099 from time to time, assessing her progress, 0:06:55.100 --> 0:06:59.774 Part H service coordinators keep track of where the family is going 0:06:59.775 --> 0:07:02.099 and where they have been. 0:07:02.100 --> 0:07:05.099 What services is the family receiving? 0:07:05.100 --> 0:07:07.874 What are the cost of these services? 0:07:07.875 --> 0:07:12.449 The tracking system also helps to identify what services are missing? 0:07:12.450 --> 0:07:15.774 And what areas may need improvement? 0:07:15.775 --> 0:07:20.399 Data also shows the growth of the statewide Part H program. 0:07:20.400 --> 0:07:23.949 A unique feature of Part H is that the family, 0:07:23.950 --> 0:07:27.849 like the bike-rider, has control over where to go, 0:07:27.850 --> 0:07:31.899 when to stop, and when to get on and off again. 0:07:31.900 --> 0:07:34.074 [Music] 0:07:34.075 --> 0:07:38.424 The handlebars of the bicycle are in the control of the family. 0:07:38.425 --> 0:07:43.199 Control over the direction to go is in the family's hands. 0:07:43.200 --> 0:07:46.049 This family control is new for professionals 0:07:46.050 --> 0:07:49.099 who are used to telling families what to do. 0:07:49.100 --> 0:07:52.499 In this instance, the family is in charge. 0:07:52.500 --> 0:07:55.874 [Music] 0:07:55.875 --> 0:07:58.749 Like the bicyclist's protective helmet, 0:07:58.750 --> 0:08:02.649 Part H has important procedural safeguards. 0:08:02.650 --> 0:08:06.124 These safeguards include confidentiality, 0:08:06.125 --> 0:08:09.924 and the family's right to their own records. 0:08:09.925 --> 0:08:14.349 And, like the bicyclist, if the family runs into problems, 0:08:14.350 --> 0:08:16.924 they can sound the horn by making an appeal 0:08:16.925 --> 0:08:18.224 if something isn't right. 0:08:18.225 --> 0:08:21.224 [Music] 0:08:21.225 --> 0:08:25.474 As children reach the cut-off of Part H at age three, 0:08:25.475 --> 0:08:29.224 the IFSP plan is rewritten for the transition 0:08:29.225 --> 0:08:33.474 into the appropriate next steps for the child and the family. 0:08:33.475 --> 0:08:37.249 [Music] 0:08:37.250 --> 0:08:41.249 The most challenging part of this bike is the price tag. 0:08:41.250 --> 0:08:43.724 Part H must be paid for by the time the state 0:08:43.725 --> 0:08:46.199 enters its fifth year of planning. 0:08:46.200 --> 0:08:48.474 It can be paid for through many sources, 0:08:48.475 --> 0:08:52.074 including federal, state and local funds. 0:08:52.075 --> 0:08:58.799 Direct services may be paid for by families using a sliding scale. 0:08:58.800 --> 0:09:02.099 Health insurance may be used for direct services 0:09:02.100 --> 0:09:04.399 but the framework for identification, 0:09:04.400 --> 0:09:08.299 referral and evaluation, IFSP planning, 0:09:08.300 --> 0:09:12.599 and service coordination must be made available statewide, 0:09:12.600 --> 0:09:15.049 free of charge to eligible families. 0:09:15.050 --> 0:09:17.749 [Music] 0:09:17.750 --> 0:09:20.399 Remember, that a bicycle functions well 0:09:20.400 --> 0:09:23.399 only if all of its parts are maintained 0:09:23.400 --> 0:09:26.124 and operate together properly, 0:09:26.125 --> 0:09:31.074 just as Part H will function best when parents and professionals 0:09:31.075 --> 0:09:36.349 coordinate and work together to help children grow and develop. 0:09:36.350 --> 0:09:40.349 [Music] 0:09:40.350 --> 0:09:44.049 Without a doubt, loving care is the most important ingredient 0:09:44.050 --> 0:09:49.499 in the Part H program. 0:09:49.500 --> 0:09:52.499 The Part H program combined with loving care 0:09:52.500 --> 0:09:56.149 will give families and children a smooth ride now, 0:09:56.150 --> 0:09:59.999 and will improve their chances for a productive future. 0:10:00.000 --> 0:10:04.999 [Music]