﻿WEBVTT

0:00:01.200 --> 0:00:03.599
I saw a bus on the way to school

0:00:03.600 --> 0:00:06.599
I saw a bus on the way to school

0:00:06.600 --> 0:00:09.449
I saw a bus on the way to school

0:00:09.450 --> 0:00:10.749
On my way to...

0:00:10.750 --> 0:00:13.224
I.D.E.A., 

0:00:13.225 --> 0:00:17.649
the Individuals with Disabilities Education Act, Part H, 

0:00:17.650 --> 0:00:22.124
describes a statewide system of early intervention services 

0:00:22.125 --> 0:00:26.049
for infants and toddlers with special needs. 

0:00:26.050 --> 0:00:29.099
Fourteen components make up this law, 

0:00:29.100 --> 0:00:32.924
components like the family service plan, 

0:00:32.925 --> 0:00:36.699
child referral, and public awareness.

0:00:36.700 --> 0:00:40.624
All the components must fit together as a comprehensive system 

0:00:40.625 --> 0:00:44.674
that parents and professionals who provide services to children 

0:00:44.675 --> 0:00:48.924
with disabilities need to understand. 

0:00:48.925 --> 0:00:53.149
Part H expert, Doris Haar, found a way to visualize 

0:00:53.150 --> 0:00:55.849
how the law's many parts work together.

0:00:55.850 --> 0:00:58.974
I chose the bicycle as a complex mechanism 

0:00:58.975 --> 0:01:01.724
that really visualizes for me 

0:01:01.725 --> 0:01:04.524
the entire Part H program, 

0:01:04.525 --> 0:01:09.449
with all its many component parts that are essential 

0:01:09.450 --> 0:01:12.149
to a good, smooth-running program. 

0:01:12.150 --> 0:01:14.824
Just as you can't do without a pedal on a bike, 

0:01:14.825 --> 0:01:18.124
every one of the components are essential.

0:01:18.125 --> 0:01:22.849
The bicycle also represents a means of looking at 

0:01:22.850 --> 0:01:27.474
what you contribute to the program as a state planner 

0:01:27.475 --> 0:01:30.249
or a local planner or even as a family. 

0:01:30.250 --> 0:01:32.599
What are the steps you'll have to go through 

0:01:32.600 --> 0:01:36.399
in order to get to the direct services of this Part H program?

0:01:36.400 --> 0:01:42.499
[Music]

0:01:42.500 --> 0:01:46.899
The two bicycle pedals are the driving force of the system. 

0:01:46.900 --> 0:01:49.824
One pedal represents the state lead agency 

0:01:49.825 --> 0:01:53.274
responsible for administering Part H. 

0:01:53.275 --> 0:01:57.724
The other pedal represents a state interagency coordinating council, 

0:01:57.725 --> 0:02:02.574
or I.C.C., made up of individuals from many public 

0:02:02.575 --> 0:02:07.574
and private agencies, and parents of eligible children.

0:02:07.575 --> 0:02:10.399
The lead agency is selected by the governor 

0:02:10.400 --> 0:02:13.399
and is the agency that will best represent the interest

0:02:13.400 --> 0:02:18.874
of families with infants and toddlers who have special needs. 

0:02:18.875 --> 0:02:21.449
The two pedals representing the lead agency 

0:02:21.450 --> 0:02:26.724
and the I.C.C. should be well-balanced and work together.

0:02:26.725 --> 0:02:29.699
[Music]

0:02:29.700 --> 0:02:32.349
One of the first actions of these two bodies 

0:02:32.350 --> 0:02:35.524
is to agree on a definition of infants and toddlers 

0:02:35.525 --> 0:02:39.324
who will be eligible for early intervention services. 

0:02:39.325 --> 0:02:42.274
This definition may include many infants and toddlers 

0:02:42.275 --> 0:02:48.224
who not only have disabilities but are at risk for disability. 

0:02:48.225 --> 0:02:52.849
Once you have defined which infants and toddlers your state will serve, 

0:02:52.850 --> 0:02:55.324
the gears go into action.

0:02:55.325 --> 0:02:57.999
The front gear is public awareness.  

0:02:58.000 --> 0:03:01.349
Through public awareness efforts, professionals 

0:03:01.350 --> 0:03:04.124
and families must learn about this law 

0:03:04.125 --> 0:03:08.474
and understand how to make referrals to the Part H system. 

0:03:08.475 --> 0:03:11.874
Professionals and families identify and refer 

0:03:11.875 --> 0:03:15.399
potentially eligible infants and children. 

0:03:15.400 --> 0:03:17.649
The children are then evaluated, 

0:03:17.650 --> 0:03:22.724
and if they are eligible, referred into the Part H program.

0:03:22.725 --> 0:03:25.449
For instance, a physician may know 

0:03:25.450 --> 0:03:29.024
that a child will automatically qualify for services 

0:03:29.025 --> 0:03:32.099
or the child may require multiple evaluations 

0:03:32.100 --> 0:03:34.949
to determine her eligibility.  

0:03:34.950 --> 0:03:40.374
The child referral, identification and evaluation process, 

0:03:40.375 --> 0:03:43.924
like the bicycle chain, links the front gear, 

0:03:43.925 --> 0:03:47.074
which represents professional and public awareness, 

0:03:47.075 --> 0:03:51.499
with the back gear, representing the very important component, 

0:03:51.500 --> 0:03:58.074
an Individualized Family Service Plan, or IFSP.

0:03:58.075 --> 0:04:03.124
The IFSP is a plan developed by professionals and families 

0:04:03.125 --> 0:04:06.249
that outlines services that will be set into motion 

0:04:06.250 --> 0:04:09.124
for the benefit of a family. 

0:04:09.125 --> 0:04:12.749
The first step is bringing professionals and family together

0:04:12.750 --> 0:04:17.824
 to develop an Individualized Family Service Plan.

0:04:17.825 --> 0:04:20.999
The IFSP is developed by a team 

0:04:21.000 --> 0:04:24.574
and the family is a major team member. 

0:04:24.575 --> 0:04:27.849
This mother has specific knowledge of her child's needs 

0:04:27.850 --> 0:04:33.224
and gets help from the various professionals in meeting those needs.

0:04:33.225 --> 0:04:35.899
The connection between the family and services 

0:04:35.900 --> 0:04:38.549
is often made by a service coordinator 

0:04:38.550 --> 0:04:42.974
who brings services and families together.  

0:04:42.975 --> 0:04:45.599
An important feature of Part H is 

0:04:45.600 --> 0:04:49.299
that the family has control of the family service plan.

0:04:49.300 --> 0:04:51.374
[Music]

0:04:51.375 --> 0:04:55.149
The services themselves are like the bicycle's rear wheel, 

0:04:55.150 --> 0:04:58.274
constantly moving the family ahead. 

0:04:58.275 --> 0:05:01.499
Services may include home-based 

0:05:01.500 --> 0:05:04.399
or center-based care that occurs in a setting 

0:05:04.400 --> 0:05:07.699
that is natural for the child and the family. 

0:05:07.700 --> 0:05:10.574
Nursing services;  

0:05:10.575 --> 0:05:12.999
therapies;

0:05:13.000 --> 0:05:17.449
speech and language services. 

0:05:17.450 --> 0:05:19.674
Parent support where parents, 

0:05:19.675 --> 0:05:21.749
who have been through this kind of experience, 

0:05:21.750 --> 0:05:25.099
are able to support other parents. 

0:05:25.100 --> 0:05:28.524
Transportation. 

0:05:28.525 --> 0:05:31.749
Vision services. 

0:05:31.750 --> 0:05:36.349
Augmentive devices and products.

0:05:36.350 --> 0:05:41.749
States are required to compile a central directory of service resources. 

0:05:41.750 --> 0:05:45.724
This is a list of all the public agencies and private businesses 

0:05:45.725 --> 0:05:52.024
available to help families with eligible children.

0:05:52.025 --> 0:05:56.774
The Part H law requires that professional standards be maintained 

0:05:56.775 --> 0:05:59.274
and personnel training be provided 

0:05:59.275 --> 0:06:02.774
to ensure the delivery of quality services. 

0:06:02.775 --> 0:06:07.449
Training assistance to professionals may include in-service training, 

0:06:07.450 --> 0:06:11.374
continuing education and pre-service training.

0:06:11.375 --> 0:06:13.199
[Music]

0:06:13.200 --> 0:06:16.424
The bicycle's front wheel represents other resources 

0:06:16.425 --> 0:06:18.774
that are available for families through 

0:06:18.775 --> 0:06:24.299
formal and informal public and private interagency agreements.  

0:06:24.300 --> 0:06:26.649
Like the legislature and the media, 

0:06:26.650 --> 0:06:31.999
both can be very helpful in increasing public awareness about Part H. 

0:06:32.000 --> 0:06:36.074
Programs for children with special health care needs.  

0:06:36.075 --> 0:06:39.399
Mental health programs. 

0:06:39.400 --> 0:06:40.924
Like the bicycle's tire, 

0:06:40.925 --> 0:06:45.849
interagency agreements help families and children move ahead.

0:06:45.850 --> 0:06:48.199
[Music]                                              

0:06:48.200 --> 0:06:51.449
Just as the distance cyclist stops and checks her map 

0:06:51.450 --> 0:06:55.099
from time to time, assessing her progress, 

0:06:55.100 --> 0:06:59.774
Part H service coordinators keep track of where the family is going 

0:06:59.775 --> 0:07:02.099
and where they have been. 

0:07:02.100 --> 0:07:05.099
What services is the family receiving? 

0:07:05.100 --> 0:07:07.874
What are the cost of these services? 

0:07:07.875 --> 0:07:12.449
The tracking system also helps to identify what services are missing? 

0:07:12.450 --> 0:07:15.774
And what areas may need improvement?

0:07:15.775 --> 0:07:20.399
Data also shows the growth of the statewide Part H program.

0:07:20.400 --> 0:07:23.949
A unique feature of Part H is that the family,

0:07:23.950 --> 0:07:27.849
like the bike-rider, has control over where to go, 

0:07:27.850 --> 0:07:31.899
when to stop, and when to get on and off again.

0:07:31.900 --> 0:07:34.074
[Music]

0:07:34.075 --> 0:07:38.424
The handlebars of the bicycle are in the control of the family. 

0:07:38.425 --> 0:07:43.199
Control over the direction to go is in the family's hands. 

0:07:43.200 --> 0:07:46.049
This family control is new for professionals 

0:07:46.050 --> 0:07:49.099
who are used to telling families what to do.  

0:07:49.100 --> 0:07:52.499
In this instance, the family is in charge.

0:07:52.500 --> 0:07:55.874
[Music]

0:07:55.875 --> 0:07:58.749
Like the bicyclist's protective helmet, 

0:07:58.750 --> 0:08:02.649
Part H has important procedural safeguards. 

0:08:02.650 --> 0:08:06.124
These safeguards include confidentiality, 

0:08:06.125 --> 0:08:09.924
and the family's right to their own records. 

0:08:09.925 --> 0:08:14.349
And, like the bicyclist, if the family runs into problems, 

0:08:14.350 --> 0:08:16.924
they can sound the horn by making an appeal 

0:08:16.925 --> 0:08:18.224
if something isn't right.

0:08:18.225 --> 0:08:21.224
[Music]

0:08:21.225 --> 0:08:25.474
As children reach the cut-off of Part H at age three, 

0:08:25.475 --> 0:08:29.224
the IFSP plan is rewritten for the transition

0:08:29.225 --> 0:08:33.474
into the appropriate next steps for the child and the family.

0:08:33.475 --> 0:08:37.249
[Music]

0:08:37.250 --> 0:08:41.249
The most challenging part of this bike is the price tag. 

0:08:41.250 --> 0:08:43.724
Part H must be paid for by the time the state 

0:08:43.725 --> 0:08:46.199
enters its fifth year of planning.  

0:08:46.200 --> 0:08:48.474
It can be paid for through many sources,

0:08:48.475 --> 0:08:52.074
including federal, state and local funds. 

0:08:52.075 --> 0:08:58.799
Direct services may be paid for by families using a sliding scale. 

0:08:58.800 --> 0:09:02.099
Health insurance may be used for direct services 

0:09:02.100 --> 0:09:04.399
but the framework for identification, 

0:09:04.400 --> 0:09:08.299
referral and evaluation, IFSP planning, 

0:09:08.300 --> 0:09:12.599
and service coordination must be made available statewide, 

0:09:12.600 --> 0:09:15.049
free of charge to eligible families.

0:09:15.050 --> 0:09:17.749
[Music]

0:09:17.750 --> 0:09:20.399
Remember, that a bicycle functions well 

0:09:20.400 --> 0:09:23.399
only if all of its parts are maintained 

0:09:23.400 --> 0:09:26.124
and operate together properly, 

0:09:26.125 --> 0:09:31.074
just as Part H will function best when parents and professionals 

0:09:31.075 --> 0:09:36.349
coordinate and work together to help children grow and develop.

0:09:36.350 --> 0:09:40.349
[Music]

0:09:40.350 --> 0:09:44.049
Without a doubt, loving care is the most important ingredient 

0:09:44.050 --> 0:09:49.499
in the Part H program. 

0:09:49.500 --> 0:09:52.499
The Part H program combined with loving care 

0:09:52.500 --> 0:09:56.149
will give families and children a smooth ride now, 

0:09:56.150 --> 0:09:59.999
and will improve their chances for a productive future.

0:10:00.000 --> 0:10:04.999
[Music]