Skip to Full Menu

Providing information, education, and training to build knowledge, develop skills, and change attitudes that will lead to increased independence, productivity, self determination, integration and inclusion (IPSII) for people with developmental disabilities and their families.

At Parents' Request And Ethics Panel Approval, Doctors Deliberately Stunted Six-Year-Old's Growth
By Dave Reynolds, Inclusion Daily Express
November 2, 2006

SEATTLE, WASHINGTON--Arguing that caring for a child with severe disabilities can be more difficult as they age and grow, the parents of a six-year-old girl with developmental disabilities convinced doctors at the University of Washington to give her massive dosages of estrogen to stop her from developing.

The girl's treatment, which also included a hysterectomy, was approved by a university ethics panel, and was revealed this week in the journal Archives of Pediatrics and Adolescent Medicine.

The parents had said that keeping their daughter's body small would enable them to better take care of her at home.

Dr. Daniel F. Gunther, who is with the university's Division of Pediatric Endocrinology, and Douglas S. Diekema, at the Center for Pediatric Bioethics, said they hoped their research would generate a healthy debate on the issue.

"If growth could be permanently arrested while the child was still small, both child and parent would likely benefit because this would facilitate the option of continued care in the home," they reasoned in their report.

Related:
"Should severely disabled children be kept small?" (Reuters)

http://www.inclusiondaily.com/news/06/red/1102a.htm
"Abstract--Attenuating Growth in Children With Profound Developmental Disability" (Archives of Pediatrics and Adolescent Medicine)
http://archpedi.ama-assn.org/cgi/content/abstract/160/10/1013
"Disability Advocates Respond To "Ashley Treatment" Designed To Keep Girl Small" (Inclusion Daily Express Archives)
www.inclusiondaily.com/news/families/ashleyx.htm

---

©2016 The Minnesota Governor's Council on Developmental Disabilities
 370 Centennial Office Building  658 Cedar Street   St. Paul, Minnesota 55155 
Phone: 651.296.4018   Toll-free number: 877.348.0505   MN Relay Service: 800.627.3529 OR 711   Fax: 651.297.7200 
Email: admin.dd@state.mn.us   View Privacy Policy   An Equal Opportunity Employer 

The GCDD is funded under the provisions of P.L. 106-402. The federal law also provides funding to the Minnesota Disability Law Center,the state Protection and Advocacy System, and to the Institute on Community Integration, the state University Center for Excellence. The Minnesota network of programs works to increase the IPSII of people with developmental disabilities and families into community life.