Regular Lives for Families with Children with Disabilities
Interview with Kathie Snow
Produced by Minnesota Governor's Council on Developmental Disabilities
Speak About People First Language
Kathie Snow: People first language is critically important, and, of course, a lot of people like to say, oh, it's just that PC stuff, but it's not. Whenever people say it's PC, politically correct, that's a way of sort of putting it down, of saying it's not really important. And I've found that most people who even talk about, oh, it's just PC no matter what it is, are usually people that have never been on the receiving end of slurs or prejudice or discrimination. Most people who have been on the receiving end are aware of the sensitivity to it.
But people first language was started by people with disabilities back in the '70s as really part of the people first movement that came out of the origin of the Scandinavian countries, came to Canada by way of a conference and some people from Oregon went to the conference in Canada. And it was people with disabilities, specifically, people with cognitive disabilities, who said, we are not our disabilities. We are people first. I'm a person first. And they also said, we can speak for ourselves. So that was the beginning of what we look back on now and call the people first movement or the self advocacy movement.
And when I was in the Partners program, so, again, this was back in the 1970s, but all of us can be sort of slow learners, including myself. When I was in the Partners in Policymaking® program in 1990 and 1991, all the graduates had to complete a project within a few months of graduating, and I chose to write an article about people first language. People first language was sort of… it was sort of there, it was sort of around at that time, but not to the degree that it became later, as more and more people got involved and interested in it.
And so there weren't really any articles written about it. And I cared about it because I just hated the way people talked about my son. I hated the way the words that doctors and professionals used to describe my son. It was like that's not who my son is. You know, the handicapped or the cerebral palsy. I mean all kinds of language.
And then, in the Partners program, there were adults with disabilities who were helping me learn about the importance of it, about what it feels like to be described a certain way and how you see yourself by how you're described. And at the same time, there were a couple people in the class that had disabilities that talked about themselves in horrible ways, and you realized that they did that because that's the way their parents talked about them.
I mean children grow up talking and seeing themselves through the eyes and ears of their own parents. I mean they… I love this wonderful quote. I think the lady's name is Marcelene Cox and she said, "Children can never be better than their parents think they are." I mean children, the mirror is by looking in our eyes. They can't be very good because that's the image that we've given them.
And so people first language is very, very important. It's very simple. It's not hard to understand. You put the person before the disability. It's a person with a disability. It's not a handicapped person. We're going to get rid of that "H" word altogether. The "H" word is as pejorative as the "N" word is to other people.