Features (See Complete Feature Index)
The 70th Anniversary of the Universal Declaration of Human Rights
Part 3 NOVEMBER – HEALTH AND EDUCATION
The 70th anniversary of the Universal Declaration of Human Rights will be celebrated on December 10, 2018. The Minnesota Governor's Council on Developmental Disabilities joins this international celebration with four website features, one released each month beginning in September as we countdown to the December 2018 anniversary.
This is the third in a four part series of features leading up to the 70th Anniversary of the Universal Declaration of Human Rights on December 10, 2018. These rights are all related to the core values of respect and human dignity that should be afforded to all individuals in all places, are interwoven throughout the Declaration, and speak to the common good.
The Articles that articulate health and education are highlighted this month.
Everyone has the right to a standard of living adequate for the health and well-being of himself and of his family, including food, clothing, housing and medical care and necessary social services, and the right to security in the event of unemployment, sickness, disability, widowhood, old age or other lack of livelihood in circumstances beyond his control.
- Everyone has the right to education. Education shall be free, at least in the elementary and fundamental stages. Elementary education shall be compulsory. Technical and education shall be made generally available and higher education shall be equally accessible to all on the basis of merit.
- Education shall be directed to the full development of the human personality and to the strengthening of respect for human rights and fundamental freedoms. It shall promote understanding, tolerance and friendship among all nations, racial or religious groups, and shall further the activities of the United Nations for the maintenance of peace.
- Parents have a prior right to choose the kind of education that shall be given to their children.
To illustrate Article 26 and its meaning to people with developmental disabilities, testimonials from three self-advocates have been selected. Each person has benefited from the Universal Declaration of Human Rights. Ricardo Mourao, Judy Weiser and Kelly Lee speak about the right to self-determination and how they have dedicated their lives to helping others.
To see additional testimonials from individuals with developmental disabilities and family members linking disability rights to human rights visit: http://mn.gov/mnddc/future/video-index.html
Since 2001, the Minnesota Governor's Council on Developmental Disabilities has conducted customer and market research studies. Over 25 studies have been commissioned. The topics selected are in keeping with critical public policy issues, ones of major concern to individuals with developmental disabilities and their families, and ones that are aligned with the rights expressed in the Declaration. Regardless of the time period, the fundamental needs of people demand our attention. Strides have been made and public attitudes have changed, in some instances quite dramatically.
Three quality of life surveys have been conducted with the following key findings:
- The impact of a developmental disability is most pronounced for respondents' abilities to learn, to live independently, and to be economically self-sufficient.
- Overall, quality of life responses to inclusion, productivity, self-determination, integration, and inclusion (IPSII) questions have remained fairly steady from 2000 to 2015; levels of satisfaction with inclusion are generally the lowest, while the level of satisfaction with independence has seen the largest decline among survey respondents.
- Having a job is associated with higher levels of satisfaction with one's quality of life, especially feeling productive and integrated into the community.
- Respondents with developmental disabilities between the ages of 19-34 have the highest unemployment rate, with about half of respondents without a paying job (based on 2015 data).
- Age matters, with respondents under the age of 18 feeling less satisfied with their quality of life, in particular in terms of inclusion and integration.
- In the most recent survey (2015), respondents identified economic security, access to services, and affordable housing as critical issues for improvement. For younger respondents, access to and inclusion in public education were most important.
The public's views, perceptions, and satisfaction with health care and health care services are contained in two surveys with the following key findings:
- Both the 2004 and 2018 surveys found that nine out of 10 Minnesotans have some form of health insurance.
- The number of respondents indicating they have Medical Assistance (MA)/Medicaid more than doubled between 2004 and 2018. This is at least partly a result of the expansion of Medicaid eligibility under the 2010 Affordable Care Act (ACA).
- Medicare recipients are generally more satisfied than respondents with private health insurance on all aspects of their health care experiences.
- Regardless of differences between respondents, most agree that:
- Health care should be available to all citizens regardless of their income or employment status.
- People should not be turned away from necessary medical treatment, even if they are uninsured and cannot afford the treatment.
- Everyone should pay something for their health care, with people paying varying amounts depending on what they can afford.
- People who need more services than others, such as the elderly and people with disabilities, should get them without paying more.
- Households with a person with a developmental disability are more likely to have a pessimistic near-future outlook regarding health care quality and affordability, especially federal cuts to MA/Medicaid and health care access in general.
In April 2018, the "2018 Minnesota General Population Survey of Attitudes and Outlook Regarding Healthcare Services and Costs" was released. Over 1,000 Minnesotans were surveyed. Survey questions were similar but updated from the first survey that was conducted of Minnesotans' views on health care services and costs in 2004, and included questions on the Affordable Care Act. http://mn.gov/mnddc/extra/customer-research/MN-Healthcare-Attitudes-2018/index.html
In August 2018, the " 2018 Racial & Ethnic Populations Survey of Attitudes and Outlook Regarding Healthcare Services and Costs" an oversampling health care opinion poll was released. Fifty individuals were surveyed from the American Indian, East African and Southeast Asian communities; findings included survey results from individuals in the Hispanic and Asian/Pacific Islander communities who had participated in the General Population Survey.
In 2014, the "Minnesota Special Education Study" was released. Benchmark measures of overall quality and satisfaction levels of the special education experience from the perspective of parents and the students themselves were obtained. http://mn.gov/mnddc/extra/customer-research/special-education-experience-study/index.html
In 2013, the "K-12 Special Education Study for Students with Developmental Disabilities" was released. Questions about quality of life issues, including the future outlook of education services, were included. Because findings showed a significantly more negative outlook about education services in households with a son or daughter with developmental disabilities, the2014 study was conducted. http://mn.gov/mnddc/extra/customer-research/K-12-Education-Study.pdf
Join the social media campaign, #Standup4human rights, that aims to engage a broad base of audiences the world over; to help promote understanding of how the Universal Declaration empowers us all; and encourage further reflection on the ways that each of us can stand up for rights, every day.
Parts One and Two may be viewed at http://mn.gov/mnddc/extra/un70th/.
Ed Roberts Family Album
Ed Roberts' son, Lee, was asked to share images from his dad's early life. He was able to visit with family members and lifelong friends of his dad. This Family Album slide show is designed to show memorable photos of Ed as a toddler, a young child, a baseball enthusiast, on the campus of UC Berkeley with his two brothers, at his wedding, and as a new father.
Lee felt this was the right time to share these family photos. The captions are his captions, in his own words. We are grateful to Lee for providing this family album with Ed's large circle of friends.
2018 Minnesota Racial & Ethnic Populations Survey of Attitudes and Outlook Regarding Healthcare Services and Costs
The "2018 Minnesota General Population Survey of Attitudes and Outlook Regarding Healthcare Services and Costs" was released on April 6, 2018. The results included measures of satisfaction with health care quality and costs, perceptions regarding changes in costs and payment responsibilities, and preferences for universal health care versus private health care insurance. Survey respondents represented state demographics in terms of geographic dispersion, age, income, and race and ethnicity including representation from American Indian, African American, and Hispanic communities.
However, the Council was again most interested in assuring that the insights and perspectives of members of racial and ethnic communities were heard so additional outreach efforts were made in the African American, Hispanic, American Indian, Asian/Pacific Islander, Southeast Asian, and East African communities. The results are available here:
The "2018 Minnesota Racial & Ethnic Populations Survey of Attitudes and Outlook regarding Healthcare Service and Costs" considers their views and concerns, and are contained in this supplemental report. Key findings include the following:
- Rates of health insurance coverage ranged from 81% in the East African community to 92% in the American Indian and Southeast Asian communities.
- Members of the American Indian and East African communities were least likely to believe that health insurance premiums have been increasing over the past couple of years, 37% and 38% respectively, compared with 60% to 77% in the other communities.
- Survey respondents gave Minnesota a rating of 6.1 to 6.7 out of a possible 9 for overall health coverage and cost, compared with a 6.4 rating for the General Population Survey.
- Members of the African American and Hispanic communities were more likely than members of the other communities to have delayed medical treatments due to cost, and over 50% delayed treatments for serious health conditions.
- The majority of respondents believe that government is responsible for ensuring that all Americans have health care coverage and all communities prefer a government-run health care system versus a system based mostly on private health insurance.
- Regarding the future of health care, 47% of African American respondents, and 32% of American Indian and Hispanic respondents believe they will be worse off in three years regarding their access to good quality and affordable health care.
Disability Rights: Voting in Minnesota
The Minnesota Disability Law Center and Mid-Minnesota Legal Aid have produced the video "Disability Rights: Voting in Minnesota." Minnesota is a leader in assuring that polling places are accessible and voting equipment accommodates voters with disabilities, but barriers persist. The 2002 Help American Vote Act has contributed to improvements in the voting process for people with disabilities and identifies the responsibilities of public officials to provide access. In this video, self advocates share their experiences in exercising their right to vote and Secretary of State Steve Simon, a strong supporter of voting rights for everyone, speaks about ongoing efforts to make the voting process easier.
Olmstead Chronology Released
The Minnesota Governor's Council on Developmental Disabilities is pleased to release a chronology of how the Minnesota Olmstead Plan was developed and has been implemented. This publication was produced with Legacy Funding appropriated by the Minnesota Legislature in 2017.
The chronology begins with the passage of the ADA in 1990, the US Supreme Court Olmstead decision in 1999 and then jumps to the Jensen Settlement Agreement approved in December 2011. The first Olmstead committee began in 2012 and then Governor Dayton appointed a Subcabinet in 2013 (Executive Order 13-01). The chronology summarizes on a monthly basis the actions taken, the reports that were prepared, the multiple versions of the Olmstead Plan, and the court orders.
We believe this chronology will assist individuals with disabilities, families, advocates, professionals and the general public understand the efforts of so many individuals and state agencies since 2012.
The Future of Disability Rights, Activism, and Inclusion in the 21st Century
The Minnesota Governor's Council on Developmental Disabilities is pleased to announce the launch of our 2018 Legacy-funded Project, entitled "With an Eye to the Future." Welcome to the future of disability rights, activism, and inclusion in the 21st Century!
"With an Eye to the Future" begins in 2000 where the previous Minnesota history feature, "With an Eye to the Past," ended.
"With an Eye to the Future" offers over 750 documents, more than 20 interviews, numerous presentations by subject matter experts, and most excitingly, a brand new story section featuring 120 segments filled with events, debuts, or descriptions of the actions that have shaped our understanding of and approach to developmental disabilities from 2000-2018.
- Major media stories,
- Legislative changes, and
- Research results.
"With an Eye to the Future" was funded by the Minnesota Humanities Center and the Clean Water Land & Legacy Amendment. The generous funding of $55,000 allowed us to go beyond our promises to the Legislature, and deliver a true "legacy" project.
A "legacy" is a connection between generations – it remembers the past, shapes the present, and influences the future for the better. It is up to us to shape the 21st Century so that the future we pass on is filled with opportunity, equality, and inclusion.
We invite you to visit "With an Eye to the Future" at mn.gov/mnddc/future .
2018 Minnesota General Population Survey of Attitudes and Outlook Regarding Healthcare Services and Costs
In 2004, Governor Tim Pawlenty appointed former US Senator David Durenberger to head the 18 member Minnesota Citizens Forum on Health Care Costs. Its task was to address a "crisis of affordability" of health care. Members traveled the state for three months, conducted Town Hall meetings and listening sessions, and gathered ideas on what the state's health care system should look like.
"There's no question in my mind that we can find a great deal of common ground in health care reform," said Governor Pawlenty. "We can't afford to politicize this issue, but need to come together on real solutions designed to cut health care costs for Minnesotans."
A 20-minute telephone survey was conducted of a representative sample of 800 Minnesotans. The results included measures of satisfaction with health care quality and costs, perceptions regarding changes in costs and payment responsibilities, and preferences for universal health care versus private health care insurance.
Fourteen years later, in 2018, the Governor's Council on Developmental Disabilities replicated the opinion poll and surveyed over 1000 Minnesotans. The results are available here:
- The vast majority of the respondents had some kind of health insurance coverage (92%).
- Most respondents believe healthcare coverage costs are rising, and that it matters.
- Survey Respondents gave Minnesota a "6.4" out of a possible "9" for Overall Health Coverage and Care.
- The future of healthcare does not look bright according to 27% of survey respondents.
- As for attitudes on "public or government-run" versus "private" health insurance coverage, Minnesotans are evenly split.
- Minnesotans make recommendations to Congress.
Medicaid: Supporting and Saving Lives of Minnesotans with Developmental Disabilities
On February 8, 2018, the Minnesota Governor’s Council on Developmental Disabilities sponsored a workshop on Medicaid. Self advocates and parents were interviewed about the importance of Medicaid in their lives.
(March 12, 2018, updated April 24, 2018)
It's My Choice: 2017 Edition Available
The Minnesota Governor’s Council on Developmental Disabilities is pleased to announce the 2017 edition of It’s My Choice. The concept and principles of person centered planning are interwoven throughout. All sections of the workbook have been updated and the Person Centered Plan is one of the first checklists. The format is also designed for easier navigation and to improve usability.
The online version is available at http://mn.gov/mnddc/extra/publications/Its-My-Choice.pdf. Print copies can be requested using the order form on the Publication Page.
(January 2, 2017)
The Ambassadors for Respect Anti-Bullying Handbook
The Governor’s Council on Developmental Disabilities is pleased to release The Ambassadors for Respect Anti-Bullying Handbook. This replication manual provides background information about the program and addresses the problem of bullying – the incidence of various types of bullying, academic studies showing the more immediate as well as the long-term effects of bullying, and comparisons between students with disabilities and students without disabilities.
Ambassadors for Respect, self advocates who experienced bullying, inspired the Anti-Bullying Program that was initiated in the St. Paul Public Schools in 2013. Over the past four years, they have successfully led 38 training sessions for 1,010 fourth grade elementary school students and 45 classroom teachers in 12 schools.
The Handbook provides details about the presentations – preparing for the training sessions, materials for activities, the on-site presentation process, take-aways for the students, and student surveys. Quality principles and a continuous quality improvement process are built into the program to measure its overall effectiveness, success in creating and reinforcing positive student attitudes, and reducing and eliminating bullying incidents.
(December 1, 2017)
Governor’s Council on Developmental Disabilities Launches Legacy Project
With An Eye to the Past—Preserving Minnesota’s History about Developmental Disabilities
The State of Minnesota held a Grand Opening of the State Capitol the weekend of August 11 – 13, 2017. The Minnesota Governor's Council on Developmental Disabilities was invited to present a "Hot Dish" panel about the history of developmental disabilities on Sunday, August 13, 2017. Colleen Wieck, Executive Director, began the panel with a brief review of the online archive "With An Eye to the Past," followed by presentations by Class 34 Partners in Policymaking® Graduate Justin Smith and former Senator David F. Durenberger. Senator Durenberger was a cosponsor of the Americans with Disabilities Act (ADA). Justin Smith is a beneficiary of the ADA, our nation's first comprehensive civil rights law addressing the needs of people with disabilities, prohibiting discrimination in employment, public services, public accommodations, and telecommunications.
These segments will be added to "With An Eye to the Future" as part of the Council's newly funded Legacy Project.
Justin Smith, Class 34 Partners in Policymaking® Graduate
Thank you for being here today. I cannot believe that I am here presenting with one of the authors of the Americans with Disabilities Act and a woman who has done so much to improve of the lives of people with disabilities, from helping to close institutions to starting the Partners in Policymaking Program. Thanks to assistive technologies like CART captioning, which makes it easier for me to hear, my communication device that helps me speak, and power wheelchair that helps me move, I can accomplish so much more and be so much more independent than if I had been born at an earlier time.
Let me tell you some stories about my experiences living with disability and my dreams for the future. Imagine a small group of high school students sitting around their computer in my bedroom. There is laughter, sharing ideas, [inaudible],the plan for our history class presentation. I have my section about civil rights, disability rights, and sports in the 1960s ready to add to the lengthy PowerPoint. Another student was creating a Jeopardy game and two guys were figuring out what we would wear.
For me, this was an experience I will always remember because we all contributed to the project in meaningful ways to get that A. I believe that we all learned a lot more about teamwork, respecting differences, helping others and knowing that each of us has so much to offer when working together towards a goal. This was inclusion at its best. Unfortunately, that rich group experience did not happen very often for me except for my church youth group where I was accepted and included like any other teenager.
I have had positive examples of accessibility and inclusion in the real world since graduating high school. My first was with my US history course at Century College last spring. My professor was outstanding. Course materials, presentations and business were online and accessible. He noted the class discussion questions ahead of time so I had time to program responses on my communication device. For one of the first times in my life, I could fully contribute my thoughts and ideas in class. I learned so much, not just about history but how one professor can make a positive impact and difference by just taking some extra time to be organized and think ahead of time about what I needed to be successful in his class.
As we move on carving out the future I hope that educators from preschool through college or other postsecondary options can keep finding the opportunities for meaningful inclusion to happen. The teacher in my 10th grade class and professor in my college history course both talked about how to make learning work for all students, even those of us with disabilities. We need more teachers and professors who embrace inclusion and think ahead of how to make it work for all of their students. These have been some of my experiences in the educational system.
What's next up and what do I imagine for my future? I imagine a future for myself as one where I choose where I want to live, who I want to hang out with, what I will do each day and how I contribute to making the world a better place, the decisions that many of you in this room may take for granted.
As I move through the halls of the Capitol today, I know that I will be spending a lot of time here as a disability rights advocate, volunteering for the Olmstead Community Engagement Workgroup, writing my blog, and speaking about accessibility and inclusion. I need help from the government services to live the life I imagine. I need 24-hour care to help me with all my basic personal cares.
Imagine that you have to depend on another person to give you a drink of water if you're thirsty, feed you if you're hungry and help to go to the bathroom when you need to go. It is important for people to realize that I can do what I do because I have the medical care, special equipment and support staff I need to help me with these things. I know that these issues have become very politically labeled which makes it even more important than ever to make my voice heard and for you to make your voices heard in our political process. Legislation that advocates have brought forth like the IDEA for education, Medicaid, the Olmstead Plan, and more all help me live an independent productive life in my community.
When I met and interviewed Dr. Wieck for one of my high school writing assignments, I remember her telling me what it was like for people with disabilities living in institutions. Her words made a lasting impact on me. She said when you treat people differently, when you treat someone like an animal, you will get an animal. You can imagine what my future could have been like had I been born at an earlier time. It's heartbreaking. I am thankful for all the advocates who have made it possible for me to have more options now.
I graduated from Partners in Policymaking this spring and have learned so much about becoming an effective advocate to continue creating positive change for people with disabilities. John Green writes in the book, Paper Towns, "Its easy to forget how full the world is of people, full to bursting and each of them imaginable and consistently misimagined. We all want to be imagined complexly as the individuals we are, not held back because we look, move, think or speak differently."
I have the same hopes and dreams for my future that many of you aspire to. All of us are unique and face difficulties. There are many times when I feel like an outsider because I do not think people imagine me complexly or know what to say to me or how to talk to someone who uses a communication device. I expect that there are many of you here who have felt the same. I think that we still have a long way to go with inclusion in school, work and life. I want to have a longer list of examples to choose from for my positive inclusion experiences. It really should be more than a handful of positive examples in 19 years.
So what can we all do when we leave here today? Think and plan ahead to make sure people are included in meaningful ways. Go beyond the simple Minnesota nice "Hi. How are you?" and realize that I and others with disabilities have a lot to say and need people to take the time to listen.
Also, what I learned from Partners in Policymaking is the importance of showing up. Show up here and talk to your legislators. Show up to volunteer like I'm doing with the Olmstead Community Engagement Workgroup. Show up to vote. This Capitol belongs to all of us.
Above all, open your minds to new ideas, new people, and new experiences. It takes every one of us here today to choose the infinite possibilities to create a more inclusive society where we see value and dignity in all people.
Former US Senator David F. Durenberger
I didn't think anybody could top Colleen Wieck until Justin Smith. God bless him. Oh, man. I tell you. I've forgotten what I was going to say. These people are just way, way, way beyond unbelievable. I had a line that said,"Hi, I'm Dave Durenberger and I'm aging into my disabilities." But I am. I'm supposed to be in California but I've wrecked my left shoulder so I decided to stay home and be with you. But I'm so impressed and I'm also kind of choked up - I hope you can tell - because there is nothing like the gift of public service.
My son Charlie over here has been a public servant in the state of Minnesota for his whole, whole life. And I started here 50 years ago up in the Governor's office as Executive Secretary to Harold LeVander, and my learning curve began then and it's going today. It's just absolutely incredible what a gift it is to be in the profession of learning from other people. It's just amazing. And I have to say that to you because the impression you get from everybody in politics and government today is that they ain't learning anything. I mean my own party's spent seven years trying to wreck health reform by calling it repeal and replace. And they've spent six months trying to figure out what they mean. They have no idea what they're talking about. Why? Because not one of them has taken the time to master what you have mastered by your own experiences with people with developmental and other disabilities.
I found a picture that I showed Sarah, who's my oldest granddaughter, this morning. Oh, here it is. Here's a picture of the Senator with little Sarah. Little Sarah is like, in this picture, like a month old or something less than that. Now she's sitting back there, graduate of Bethel, and she's in one of the health professions.
The reason I thought I would show you this picture, and I just found it, is because on May 11 of 1994, the Senate was having its first hearing on the Clinton Health Reform bill. Long awaited. Hillary Clinton's in charge. The health reform bill. So we;re having the first hearing and Senator Ted Kennedy, the famous leader in health reform, is in the chair. And at some point in the program, he takes out his gavel. He notices that I've been going in and out periodically from the meetings. I'm the Republican on the committee. Nancy Kassebaum, my friend and colleague, is the chair and I'm the health guy on the committee. So I'm going in and out to the side room.
So the last time I come out I seem to have like tears in my eyes or something, and so the chairman hits the gavel like this. He said, "I want to call this hearing to recess. And I want to be the first in America to make this announcement. Today was born, in St. Paul, Minnesota, Sarah Marie Durenberger." And he gives her weight, he gives her height, and he said, "Now we know why Senator Durenberger's been kind of grouchy about this health reform." Can you believe that happening in today's United States Senate?
How did he know? I don't know, except that's who we were. We were friends. Our kids grew up together. We knew a lot more about each other than we probably thought we did. And one of the reasons was we learned to share experiences that were common to the people of our state, and those who could express those experiences with everyone else. And then you would find people just like you from another state who hadn't met people like Colleen or Justin or whoever it might be. And you'd start, okay, start coming closer and closer and closer together. And so it was a... it wasn't a magic moment. It's what the United States Senate was always intended to be. I can tell you, and I won't today, exactly what happened, how it's been torn down in the last 20-some years. I can tell you exactly why that has happened.
But it's not America. It's now who we are. It's not who we can be. It's not who Justin is. It's not who Colleen is. It's not who Mom and Dad are. It's not who any of us are, I don't think It's even the people in this building. They talk like it sometimes, but I don't think it's even them. They're living in communities just like we live in. Don't you think they hear the same thing? Don't you think they see the same thing? Don't you think they feel the same thing inside? They just haven't learned how to translate that into action, which is the gift of all the people in this room and the stories that you've heard today.
I sat here because...listening to Colleen's story because my wife Susan, who's on a plane to California today just finished a book that's going to be published next April by the Minnesota Press on how did Luther Youngdahl... was persuaded to take on these institutions... this institutionalization in Minnesota back in 1949. The victory in 1950, which was snatched away by real conservative Republicans in 1951... so he took a job in Washington as a federal judge and never came back and the whole movement started to go like this. And Susan captured in this book that Colleen was talking to you about, about who we are as Minnesotans. Who we were in 1940s, the heroes and heroines. And she captures a few of our prejudices.
Geri Joseph and Geri... what were they... Hofner. Yes, Geri Hofner was a brand-new reporter at the Minneapolis Tribune. She wanted to go to The New York Times. Can you imagine a woman at The New York Times? Wow, not in those days. But she was going to go to The New York Times.
They talked her into staying at the Tribune, they promised her this story. She went to see the Governor, and he said, "If you publish?" And she said, "I'm going to go into all seven institutions." And he said, "If you do and you publish stories, I'm going to have your job." Whew. So she goes back to her boss, Bower Hawthorne at the Trib, and he says, "Ah, forget it." So he goes with her, tells the Governor, "She's going to do these stories regardless," you know. "You'll get to see them before they go in the paper," but he can't change a word of it.
So she writes these stories. And a year and a half later she gets the highest reward for journalism in Minnesota from the Minnesota Newspaper Association. Why? Because it was a really good story, number two, and because they thought she was a he. Believe it or not, the Minnesota Newspaper Association thought Geri Joseph was a man. Okay. So we've come a long way. Right? We've got a long way to go. What happened yesterday in Charlottesville where Charlie went to school in Virginia is still happening all over America, you know? Yes, we have a long way to go. But we have built the capacity to get there. And not just in this room but in tens and hundreds of thousands of people in this state. Our capacity is still there. We are who we are. Our institutions are really unique institutions.
So that isn't exactly what I planned to say, but I'm going not to tell you the story of the Americans with Disabilities Act. It's been told and retold. I've got to tell you the greatest day in my life was that time in the third or fourth week in July sitting on the mall and watching with thousands of people as President George H. W. Bush came out to the podium and the band struck up "Hail to the Chief," whole bunch of people stood up and all you could hear in the place was, "Down in front! Down in front!" And I knew I was in the right place. I knew I was in the right place, "Down in front." Wow.
What a gift is public service. What a gift is the teaching profession, the point that Justin made. What a gift is any one of your opportunities, the fact that you're here today. And the question for all of is: What are we going to do with it? You know, are we waiting for somebody else to take the lead? You know, will we do it? When will we do it? How will we do it? How will we get started? So the future? And the last thing, because I was asked to make some reference to healthcare, I've been at this for 51 years too, which is a heck of a long time to say you didn't get any place because they're still doing R and R.
But, you know, every once in a while you come up against a crisis. When the biggest industry in America, a three-and-a-half-trillion dollar industry, is about to face the reality of wake up, find out what's wrong, and get it right. And Obamacare got most of it right. But Republicans spent seven years trying to belittle it and tear it down and make sure it didn't work. It's that simple. I'm saying that as a Republican.
It's that simple. It will work. It can work. And America is the place that it can work. Because we do believe... and I've got the data from your study back in Minnesota Citizens on Health Cost Containment that tells us that, by a fraction of 80 to 20, Minnesotans believe that it is our responsibility to make sure that all of us have access to high-quality healthcare, which only means it has to be affordable and it has to be effective. And the people that know how to do both are in the health professions today. We just need to change the incentives.
And a lot of us know what it takes to do that. Again, because it's the right thing to do. This is the right place to do it. Maybe the only place to do it. So thank you for the gift of being here today. And if there's anything I can do to add any dimension to anything I've said, I'd be glad to do it. Yeah.
This work is funded in part with money from the Arts and Cultural Heritage Fund that was created with the vote of the people of Minnesota on November 4, 2008.
The Governor’s Council on Developmental Disabilities thanks the Minnesota Legislature, the Minnesota Humanities Center and the Minnesota Department of Administration for assistance on this Legacy Project feature.
(November 1, 2017)
Welsch v. Likins Class Action Lawsuit 45th Anniversary
August 30, 2017 marks the 45th Anniversary of the Welsch v. Likins class action lawsuit brought on behalf of six individuals with developmental disabilities, residents of six different Minnesota State Hospitals.
The Welsch Lawsuit, according to Luther Granquist, plaintiff counsel on the case
In 1972 Richard Welsch sought help from the Legal Aid Society of Minneapolis for his daughter, Patricia Marie, a resident of Cambridge State Hospital. He told Neil Mickenberg, an attorney there, that Patricia was at that “hellhole” and wondered if Neil could do anything about it.
Welsch had heard that Mickenberg and Jeffrey Hartje, another Legal Aid lawyer, had been told by state hospital professional staff that Cambridge and Faribault State Hospitals were ripe for the kind of lawsuits that had been brought in other states. On August 30, 1972, with the support of The Arc Minnesota, they sued state officials charging that the residents at Cambridge, Faribault, and four other state institutions were denied their rights to habilitation and to live in less restrictive community settings.
The lawsuit lasted seventeen years. The trials in the 1970s centered on Cambridge State Hospital. A trial in 1980 involving Faribault, Moose Lake, Brainerd and Fergus Falls State Hospitals led to a settlement that included Rochester, St. Peter, and Willmar State Hospitals. Another settlement in 1987 led to a final dismissal of the case in 1989.
In the early years, attorneys from the Minnesota Disability Law Center at Legal Aid focused on institutional conditions—lack of adequate staff, excess use of medication and restraint, and a deplorable living environment. In the 1980s, the focus was on moving people from the institution to community homes, with an emphasis as well on the quality of care provided persons discharged.
No court order or settlement agreement in the case required closing of the state institutions, but the court action coupled with funding under the home and community-based waiver, and a steadily growing commitment by state and county officials to provide community-based services, led to that result over the next eleven years.
Photographs from the 1973 trial (from With an Eye to thePast)
Welsch-related Interviews from With an Eye to the Past
Eleanor Welsch, mother of Patty Welsch, whose parents filed the landmark federal suit over lack of care at Cambridge State Hospital.
Part 1: The Beginning of the Welsch Case from a Mother’s Viewpoint
Part 2: The Cambridge Experience
Part 3: Group Homes are a “Godsend”
Luther Granquist, with Anne Henry, both of the Minnesota Disability Law Center, served as plaintiff counsel on the Welsch case.
Part 1: The 45th Anniversary of the Welsch Case Beginning
Part 2: Lack of Individual Assessment and Structured Activity at Cambridge
Anne Henry of the Minnesota Disability Law Center, worked with Luther Granquist on the Welsch case.
Part 1: Restraint and Seclusion at State Hospitals
Part 2: Dehumanization Practices
Part 3: Getting Children Out of Institutions
An Index of Documents Related to Welsch from With an Eye to the Past, including orders in that action in the federal district court and related documents.
The Disability Justice Resource Center has a summary of the lawsuit, the Welsch decision, and the Welsch Consent Decree.
At a trial in the Welsch case in 1980 involving Faribault, Moose Lake, Brainerd, and Fergus Falls State Hospitals, the plaintiffs presented small black and white photos of the four institutions as part of their case. The defendants never presented their response, because they agreed to the Consent Decree the federal court issued in September 1980. They had, however, prepared a set of color photographs of the same scenes with some added commentary.
Photos contributed to the Council by Mel Heckt.
2017 Minnesota Racial & Ethnic Survey of Attitudes Towards People with Developmental Disabilities
The 2017 General Population Survey of Attitudes Towards People with Developmental Disabilities includes representation from racial and ethnic communities. However, the Council was most interested in assuring that the insights and perspectives of members of these communities were heard. Additional outreach efforts were made in the Hispanic, American Indian, African American, East African, and Southeast Asian communities. The results are contained in this supplemental report.
2017 Minnesota General Population Survey of Attitudes Towards People with Developmental Disabilities
In 1962, a survey of the Minnesota general population was conducted to measure awareness and attitudes about developmental disabilities. The survey was updated and repeated in January 2007 (45 years post) and again in 2012 (50 years post). A 2017 survey was also conducted and the results are now available.
While attitudes changed dramatically between 1962 and 2007, those attitudes have remained unchanged over the past ten years. The 2017 study reveals that, for a majority of Minnesotans, the most important services provide access to quality, coordinated healthcare; and protection services to prevent the abuse of people with developmental disabilities. Over 70% of Minnesotans favor employment services, special education services and early childhood special education services. A majority also believe that the State should move away from corporate foster care by providing housing supports directly to individuals with developmental disabilities so they can choose where to live, their roommates, and their staff or providers.
Human Trafficking of People with Disabilities
On April 4, 2017, the Diversity Committee, Minnesota Chapter of the Federal Bar Association, University of Minnesota Law School Division, hosted a CLE event, a panel discussion of human trafficking of people with disabilities. United States District Court Judge Donovan Frank served as moderator for panel members who shared their professional experience with human trafficking, some of the history and evolving legal landscape, and rights and remedies for victims.
One of the panel members was Sarah Bessell, staff attorney at the Human Trafficking Pro Bono Legal Center in Washington, DC. The Legal Center believes that every trafficking victim in the United States should have access to justice.
In this video interview, MS. Bessell identifies some of the types of abuses they are seeing including forced labor (sexual servitude), commercial sexual exploitation, and extreme violence and physical abuse. She presents case law examples involving people with disabilities and trends they are seeing in the types of trafficking.
Partners In Policymaking® 30th Anniversary
1987 – 2017
In 1986, a new way of thinking demanded new leadership. Medicaid reform was the critical public policy issue. A Congressional hearing on September 19, 1986 ended with a young mother presenting testimony in favor of dramatic changes to Medicaid – changes that would keep families together and provide a range of services to support families with a child with developmental disabilities.
Communicating effectively with public officials could be taught. Self advocates and parents could learn how to best speak with their elected public officials and elected public officials could be educated about policies – in partnership with each other. At that moment, Partners in Policymaking® was born.
With an Eye to the Past
The History of Deinstitutionalization in Minnesota
With With an Eye to the Past, was first presented on February 7, 2001 at a recognition event. This event was in celebration of the dedication and commitment of leaders across the state who worked together to close Minnesota’s large state institutions and develop a respectful service delivery system for individuals with developmental disabilities. We are now pleased to release a revised edition of With An Eye to the Past. This product has been converted to a responsive design format and all videos have been updated to current technology standards.
Ed Roberts Day, January 23rd
Ed Roberts was a pioneering leader of the disability rights movement. Ed declared that people with disabilities are fully human; that they have a right and a responsibility to take control of their own lives, to help build a new culture in which they and all people participate fully in the leadership, the labor, and the fruits of society.
On December 15, 2010 the United States House of Representatives declared January 23, 2011 as "Ed Roberts Day." In celebration of this day in 2017, we are pleased to share additional glimpses into Ed's life, in story and photos, as told by his son, Lee Roberts.
Partners in Living Online Course Spanish Version Released
We are pleased to announce the release of the Spanish translation of Partners in Living. This completes the series of the five Partners in Policymaking online courses that is now available in Spanish.
The design and development of the five original online courses began in 2002 with Partners in Making Your Case. Over the years, several updates to the courses have been made and other versions have been created, including an EZ Read version of the Partners in Employment course and an American Sign Language version of Partners in Making Your Case. The Spanish translations have been the most recent additions.
All of the online courses can be accessed from the Council home page, the home page of the Partners in Policymaking website, and the home page of Partners Online Courses.
Parallels in Time
The History of Disabilities: 1500 B.C. to the Present
In commemoration of the 45th Anniversary of the Minnesota Governor's Council on Developmental Disabilities, we are pleased to announce the release of a revised Parallels in Time product. This product combines the original Parallels in Time, documenting the history of disabilities from 1500 B.C to 1950 released on the 25th anniversary of the Council, and Parallels in Time 2, continuing the history of disabilities from 1950 to the present released on the 35th anniversary. All videos have been updated to current technology standards. This product has also been converted to a responsive design format. http://mn.gov/mnddc/parallels/
Partners in Policymaking® Coordinator's Handbook
In celebration of the 45th Anniversary of the Minnesota Governor's Council on Developmental Disabilities, we are pleased to announce the release of the newly revised and updated Partners in Policymaking® Coordinator's Handbook. This is the eighth edition of the Handbook, designed to help Coordinators who are starting or restarting a Partners program as well as serve as a resource for Coordinators to maintain the quality of existing programs. This version is fully accessible and incorporates all current accessibility features.
Forms Related to Replication of the Partners Classroom Program:
Partners Profile Form
Time Match Form
Respite Care/Child Care Reimbursement Form
Participant Reimbursement Request Form
Sample Partners Application
Sample Participation Agreement
Partners in Policymaking®: Changing Lives. Changing Policies.
On the occasion of the 25th Anniversary of the Americans with Disabilities Act (ADA), this book traces the history of the Partners program. Through a collection of stories and testimonials, Partners graduates share the impact of the program on their lives as well as the many ways that the ADA has resulted in their greater inclusion and integration into the community and society at large.
FORTY-FIVE YEARS OF HISTORY 1971-2016
October 2016 marks the 45th Anniversary of the Minnesota Governor's Council on Developmental Disabilities. A series of articles will cover this history, the work completed and accomplishments made by the Council during those forty-five years.
These articles will be released in five year segments over the next several months. The first segment provides brief background material on the advocacy and legislation that preceded the establishment of the Council. Read the complete article >>
The Disability Justice Resource Center
An online resource for everyone interested in learning more about the rights of people with developmental disabilities and protection of those rights.
The Disability Justice Resource Center has been created as an educational resource to increase awareness and understanding of the unique and complex issues related to justice for people with disabilities, particularly people with developmental disabilities. For the legal community, the Resource Center could be used to identify and eliminate biases against people with disabilities, for continuing legal education courses, and by law schools and students. This online resource is divided into several sections:
The ADA Legacy Project celebrates the impact of the Americans with Disabilities Act on disability rights, and honors the contributions of individuals with disabilities and their allies who persevered in securing the passage of this landmark civil rights legislation. Georgetown University has compiled a collection of historical documents related to the ADA that date back to the 1980s, the decade preceding the milestone signing of the Americans with Disabilities Act by President George H. W. Bush on July 26, 1990.
The Americans with Disabilities Act, Perspectives on the 25th Anniversary
In July 2012, the Governor's Council on Developmental Disabilities was asked to participate in the ADA Legacy Project. Over a two and one half year time period, a monthly "Moment in Disability History" was posted on the Council website, marking important happenings and recognizing some of the many, many leaders across the country who contributed to the passage of the ADA. The Americans with Disabilities Act, Perspectives on the 25th Anniversary is a compilation of those "Moments."
Quality and the Baldrige Framework
The Minnesota Governor's Council on Developmental Disabilities began its quality journey in 1997 using the National Baldrige Criteria for Performance Excellence. The Baldrige Framework, a systems approach to improving a business or organization's performance, is based on a set of core values and concepts that represent the beliefs and behaviors found in high performing businesses and organizations.
Since 1998, Bill Harreld, Quality Culture Institute, has shared his experience and expertise, working with the Council on quality improvement and the application of the Baldrige Criteria to the Council's work. This journey has been a learning experience and, since there's always room for improvement, the learning continues. For businesses that want to better serve their customers and improve their business results, this overview of the Baldrige Framework and Criteria can serve as a step in beginning that process.
"Telling Your Story"
App Available Now for iPad, iPhone, iPod Touch, and Amazon Kindle Fire
Compose and practice your personal story to present to elected public officials or other policymakers. Learn the best ways to introduce yourself and talk about your issue, record and practice your story, and include a photo if you would like.
Making Your Case, the print publication, was created in 1994. This was the first of many tools used in the Partners in Policymaking program that focused on specific techniques and insights for effective communication skills in the legislative process and the many ways to positively influence public policy at all levels of government.
Both the "Telling Your Story" app and the Partners in Making Your Case online course, released in 2003, are using different technologies based on the original publication. They all serve as tools for making those critical connections with your elected public officials and building positive partnerships in the policymaking process.
Institutions to Independence
"Institutions to Independence" is a 30 minute documentary produced by TPT (public television) in cooperation with Lutheran Social Service of Minnesota, the law firm of Fredrikson & Byron, P.A., the Minnesota Governor's Council on Developmental Disabilities, and Government Training Services. This documentary tells the story of services in Minnesota from the 1860s into the 21st Century through the telling of stories of people with developmental disabilities, families, and professionals.
In addition to the documentary, the Minnesota Governor's Council worked with TPT to create "Know Your Rights", an Illustrated Essay by David Gillette regarding the Rights of People with Developmental Disabilities.
Independence To Inclusion
A TPT Documentary Produced with the Minnesota Governor's Council on Developmental Disabilities
"Independence to Inclusion," a second TPT documentary, was produced with the Minnesota Governor's Council on Developmental Disabilities in 2014. Much has changed in terms of available services and supports, and delivery systems. However, stigma and stereotypes against people with developmental disabilities have long outlasted Minnesota's state institutions and still persist today. How will inclusion in schools, the workplace, and the community affect the lives of thousands of Minnesotans with developmental disabilities?
(View version with closed captioning)
The National Academy of Television Arts & Sciences, Upper Midwest chapter, announced the 2014 Upper Midwest Regional nominees and the TPT documentary, Independence to Inclusion, was nominated under "Documentaries – Cultural." http://midwestemmys.org/
The Evolution of the Quality of Care in Developmental Disabilities
Jim Conroy is the founder and President of the Center for Outcome Analysis, Inc., a non-profit firm that is devoted to evaluation, research, training, and policy analysis on quality of life issues in the developmental disabilities field. The Center is founded on the principle that service agencies should be guided by measurable quality of life outcomes regarding the services and supports received by individuals with developmental disabilities.
Professor John McKnight: Community Building
All the people who live in a community can help to create a welcoming environment; one that recognizes the gifts, abilities, and skills of everyone there; and invites everyone to work together to build and strengthen their community.
John McKnight, a community organizer and gifted story teller, is committed to the concepts and principles of asset based community development – discovering and enhancing the abilities, capacities, gifts and skills of every member of every neighborhood and community. In a recent conversation with Cormac Russell, Managing Director of the UK based consulting and research organization, Nurture Development, John McKnight and Peter Block speak about the renewal of communities, local living, and cooperation. (7-25-17)Play Conversation:
Abundantcommunity.com Audio Recordings Page Transcript
Capacity Building Beyond Community Services
Asset based community development is John McKnight's approach to community organizing. John is a community organizer, an academic and a brilliant story-teller. He believes that everyone has a gift, an ability, a skill to share; and everyone, regardless of how they may identify themselves or what their personal needs may be, can help to make their community better for everyone who lives there.
A collection of John McKnight's papers, where he further explains the building blocks and assets that make for an inclusive community, can be found at John McKnight Resources and Documents.