|ANNUAL REPORT FFY 2011
The Governor's Council on Developmental Disabilities (GCDD) is part of the Minnesota network of programs funded under P.L. 106-402, the Developmental Disabilities Assistance and Bill of Rights Act (DD Act). The DD Act also funds the Minnesota Disability Law Center, the designated Protection and Advocacy agency for the state, and the Institute on Community Integration, a University Center for Excellence located at the University of Minnesota.
The business of the GCDD is to provide information, education, and training to increase knowledge, develop skills, and change attitudes that will lead to an increase in the independence, productivity, self determination, integration and inclusion (IPSII) of people with developmental disabilities and their families.
COUNCIL MEMBERS AS OF DECEMBER 7, 2011
Dan Reed, Chair
FEDERAL OUTCOMES (IPSII)
Independence: Personal freedom to make choices and have control over services, supports, and other assistance the individual receives;
Self-determination: Authority to make decisions, control resources and develop personal leadership skills;
Productivity: Meaningful income-producing work or volunteer work that contributes to a household or the community;
Integration and Inclusion: Full participation in the same community activities as people without disabilities.
The Minnesota GCDD received $1,023,244 from the Administration on Developmental Disabilities (ADD) for FFY 2011. Of that amount, 71% was allocated for grants and contracts to fulfill the goals of the GCDD's Five Year State Plan approved by the federal government.
1. Partners in Policymaking®: The Minnesota GCDD has sponsored Partners in Policymaking courses since May 1, 1987. In FFY 2011, Class 28 graduated 10 self advocates and 20 family members, including three individuals from minority communities. Participants evaluated themselves at the beginning of the program year on the federal outcomes of IPSII and again at graduation. The following IPSII changes were reported: On a 5 point scale, independence increased from 4.4 to 4.6; productivity increased from 4.4 to 4.6; self determination increased from 4.1 to 4.5; and integration and inclusion increased from 3.9 to 4.2. Graduates rated knowledge gained at 4.7, usefulness of the presentations at 4.8, and quality of the training sessions at 4.8 (5-point scale).
Twenty-seven Partners graduates (1,600 total participants) attended an Autism and Employment Forum featuring Temple Grandin. Best Buy, Cargill, and 3M sponsored this event in cooperation with the Autism Society of Minnesota and the GCDD, with a grant from Vocational Rehabilitation Services, Department of Employment and economic Security,. The Forum was rated for knowledge gained at 4.6, usefulness of the presentations at 4.5, and quality of the workshop at 4.7 (5-point scale).
Partners in Policymaking Program
Partners Graduate Workshop
2. Partners Online: The Partners in Policymaking classroom program is connected in several ways to the online training courses –
Partners faculty are incorporating suggestions from the Integrating Online Learning module for the online courses into their presentations and interactive learning exercises.
The online courses are included as additional homework assignments for Partners participants to supplement and reinforce the classroom learning.
Partners participants are able to use the online courses to help make up part of a missed weekend session.
In FFY 2011, a total of 32,373 visits and 44,185 page views were made to the five regular online courses, for an average of 2,943 visits and 4,017 page views per month respectively (based on 11 months due to the 21-day state government shutdown in July 2011). A total of 379 compliments were received, and 329 Feedback Forms completed with ratings for IPSII measures - independence was rated 4.2, productivity was rated 4.2, self determination was rated 4.3, and integration and inclusion was rated 4.2 (5-point scale).
An EZ Read Partners in Employment online course was released, and an ASL version of Partners in Making Your Case was created and released; a Spanish version is scheduled for release in FFY 2012. Updates to all of the five original online courses were completed in FFY 2011.
3. Cultural Outreach: The GCDD funded cultural outreach programs in the African American and Latino communities in FFY 2011. A total of 31 individuals graduated from these training programs. In assessing IPSII, the graduates rated themselves on a 5-point scale.
For the African American Outreach program, independence increased from 3.6 to 4.4, productivity increased from 2.8 to 4.1, self determination increased from 3.4 to 4.1, and integration/inclusion increased from 3.5 to 4.5. Graduates rated the program as 4.8 for knowledge gained, 4.8 for usefulness, and 4.8 for quality of training.
For the Latino Outreach program, independence changed from 3.0 to 4.5, productivity from 2.5 to 4.7, self determination from 2.8 to 4.6, and integration/inclusion from 3.2 to 4.7. Graduates rated the program as 4.7 in knowledge gained, 4.6 for usefulness, and 4.7 for quality of training.
4. Longitudinal Studies of Partners in Policymaking: During FFY 2011 Nancy Miller, Metropolitan State University, surveyed Partners graduates from Years XIX through XXI I (Classes 23 through 26).
Based on averages across these four classes, the results indicated that 94% of the respondents have the advocacy skills necessary to get needed services and supports some or most of the time; and 90% rate their leadership skills as good to excellent. In terms of federal outcomes, 88% have increased independence, 87% have increased productivity, 90% have increased self determination, and 86% have increased integration and inclusion that they attribute to their Partners experience.
5. Digital Imaging/Employment: Since 1981, the GCDD has worked with employers and promoted the direct employment of people with developmental disabilities. During FFY 2011 –
A total of 337 people with developmental disabilities were employed in document imaging/scanning positions in Minnesota. Individuals are employed in full time, part time, intermittent, temporary, or project focused positions. A total of 63 individuals are at business locations, including the Department of Human Services (6), Pollution Control Agency (12), Mower County (5), Steele County (5), the Minneapolis Community Action Council (3), and a Correctional Facility (7). The remaining 162 individuals are working in day program settings. A total of 472 individuals have received document imaging training and have some experience in the field.
A total of 112 individuals are employed at the Midway Training Services (MTS) storefront business. Two individuals secured positions with the Ballion Law Firm in St. Paul doing document prep, scanning, and editing as well as quality assurance checks. One individual was hired by the Department of Human Services for a specific project (20 hrs/week and $14.22/hr).
Document imaging marketing efforts focused on businesses and day programs in Greater Minnesota. Workshops were held in Moorhead (scanning project for Clay County Human Services) and Chisago Lakes; and Ortonville (Big Stone County) at a County Commissioner's meeting that resulted in 10 individuals working on a scanning project for the County Courthouse.
The Autism Society of Minnesota handled arrangements for an Employment Forum, in cooperation with 3M, Cargill, and Best Buy. The Forum was held at 3M Headquarters in Maplewood and featured Temple Grandin; 1,600 individuals attended. This was in followup to the $200,000 ARRA grant that the GCDD received from the Department of Employment and Economic Development, Vocational Rehabilitation Services to increase and expand employment opportunities in the digital fields for young adults on the autism spectrum.
A policy paper, "Expanding Employment and Career Options for Individuals with Autism in 21st Century Digital Media and Communications Technology" was created and disseminated through national organizations.
Four Top 10 Actions brochures were created - for individuals with ASD and families, educators, employers, and Vocational Rehabilitation Services, identifying the steps that can be taken by each group to help young adults with ASD who are interested in technology fields to achieve their employment goals; and posted on the GCDD website.
Video interviews were completed with 11 individuals who are directly employed in a variety of positions by Minnesota public and private sector businesses, including St. Paul Public Schools, City of Minnetonka, Kraus Anderson Construction, Social Security Administration, and TJ Maxx. A new DVD will be released in FFY 2012.
6. Self Advocacy: The statewide self advocacy network, Self Advocates of Minnesota (SAM), covers all six regions in the state. The mission of SAM is to promote the human and civil rights of people with developmental disabilities, working with groups to strengthen personal empowerment, increase disability awareness, and achieve systems change.
During FFY 2011, federal funds supported the Central and Northwest regions ($100,000); and a state appropriation, part of the base allocation for the Department of Human Services, supported the Northeast, Southeast, and Southwest regions ($124,000). A variety of funding sources financially supports the Twin Cities SAM region. A total of 441 self advocates attended 35 training sessions in the Central and Northwest regions on self advocacy concepts, human rights and the Convention on the Rights of Persons with Disabilities, voting rights, discrimination, running meetings and meeting guidelines, and building leadership and strengthening leadership skills.
A total of 35 self advocates served as teachers/trainers about issues/topics that included assertiveness, communication skills, starting a self advocacy group, language and terminology issues, relationships and privacy, disability history, self determination, and personal story telling. Self evaluation results - greater independence – 96%, productivity – 77%, self determination – 97%, integration/inclusion – 93%.
Self advocates were local hosts for the national AAIDD Conference that was held in St. Paul. They presented a keynote address on the History of Self Advocacy, and were involved in both visual and performing arts, sharing the spirit of the self advocacy movement via music and spoken word. TPT (Twin Cities Public Television) produced a documentary entitled Institutions to Independence that traces the history of services in Minnesota from the 1860s into the 21st Century through the telling of stories of self advocates, families, and professionals.
David Gillette, a cartoonist with TPT, created an illustrated essay, "Know Your Rights," about the rights of people with developmental disabilities. Self advocates were interviewed and their perspectives about rights and what they mean provided the basis for this essay.
A combined DVD including Institutions to Independence and "Know Your Rights" was produced and disseminated at the state self advocacy conference in May 2011.
7. Training Conferences: The GCDD cosponsored 15 training conferences during FFY 2011; the total number of attendees was 2,599. The overall rating was 9.1 (10 point scale) and 97% of the participants rated the conferences as useful/helpful.
Suppliers: AAIDD, ACT, Inc., Arc Kandiyohi County, Arc Midstate, Arc Southeast Minnesota, Arc United, Autism Society of Minnesota, Brain Injury Association of Minnesota, Center for Inclusive Child Care, Down Syndrome Association of Minnesota, Fraser, MN APSE, MnDACA, Partnership Resources, Inc., and Reach for Resources, Inc.
8. Publications: In FFY 2011, the GCDD disseminated 10,686 print publications to 202 individuals as well as conference attendees. The evaluation scores averaged 8.8 on a 10 point scale and 98% of the respondents indicated the publications were useful. A total of 519,161 items were downloaded from the GCDD and Partners web sites.
9. E-Government Services: In FFY 2011, a total of 249 items were converted to electronic formats and/or added to the websites. A total of 242,556 unique visits were made to the GCDD and Partners websites. A total of 33,752 visits were made to www.mndisability.gov, the one stop website for all state disability programs, products, and services.
Ethical Issues, End of Life Conversations and Developmental Disabilities – Honoring Choices Minnesota (TPT production and broadcast series), Oklahoma Infanticide (Carlton Sherwood three-part series and lack of medical treatment for babies born with spina bifida), series of briefing papers on moral/ethical issues.
The Evolution of Disability Rights Litigation with David Ferleger – video presentations on the right to treatment, civil commitment and the least restrictive principle, restraint issues, the constitutional right to community services, and employment.
Ed Roberts – dedicated to his life, work and legacy, this section celebrates his induction into the California Hall of Fame and includes his bio, video segments, a photo album, Patrick Wm. Connally paintings, Bill Bronston and David Goode essays about Ed, articles, and a documentary video.
Institutions to Independence – A TPT documentary that traces the history of services and the service delivery system in Minnesota from 1861 to the 21st Century and includes an illustrated essay, Know Your Rights," and an interview with US District Court Judge Donovan Frank and Karen Loven about disability rights issues.
Capacity Building Beyond Community Services – John McKnight speaks about asset based communities and how to create welcoming neighborhoods that recognize and appreciate the gifts, abilities, and skills of every individual living there.
An emergency planning web section was launched; the California Feeling Safe, Being Safe materials and modified Minnesota version were added.
An emergency planning/preparedness subsection was created for individuals with autism spectrum disorder with products and services that may be helpful as emergency planning tools; and a tech app, Autism 5-Point Scale EP, was developed that is available free of charge at the Apple Store.
Additions to With An Eye to the Past included a series of 26 articles by Sam Newlund, Star Tribune (1984 - 1989), and relating to the Welsch case; Welsch slide show with court exhibits from 1973; monthly Access Press "History Note" articles; and Governor Al Quie interview with Lori Sturdevant, Star Tribune, about the beginning of special education.
Additions to Parallels in Time, Part 2 included Ray Stewart films (eight of a series of 13 documentaries) about Iowa institutions; Lowell Weicker film segments about institutional abuses; articles about the closures of Vineland Developmental Center (New Jersey) and Partlow Developmental Center (Alabama); Willowbrook slide show; and the Fairview Survivors film.
Additions to the ASD and Employment web section included the Top 10 Actions brochures for individuals with ASD and families, educators, employers, and Vocational Rehabilitation Services staff; Computer Explorers Summer 2011 camp offerings, iD Tech Camps at Macalester College; personal success stories; and Allan Bergman's policy paper on autism and employment.
METO section launched with Settlement Agreement documents, class members claims process, summary of key points; and videotaped interviews with Shamus O'Meara, Plaintiff Counsel, Steve Larson, The Arc Minnesota, Pamela Hoopes, Minnesota Disability Law Center, Roberta Opheim, Ombudsman Office for Mental Health and Developmental Disabilities, and self advocates about the lawsuit and Settlement Agreement.
The Document Imaging page was reorganized and webinar modules added.
An EZ Read version of the Partners in Employment online course was released.
Making Your Case in American Sign Language was created and released, and a Video Captioning Essentials online course was posted.
The Five Year State Plan for FFYs 2012-2016; Annual Business Results for FFY 2011; and Spanish versions of the publications Shifting Patterns, Making Your Case, and Stories of Leadership were posted on the Council website.
10. Customer Focused Research: Individuals with developmental disabilities and their families (222) were surveyed to learn about current levels of IPSII and the indicators for each, impact of technology and how technology is used to enhance people's lives, and experience with abuse, neglect, or exploitation; and providers (66) were surveyed about employment, health care, quality assurance, housing, and self advocacy to gather input for the Five Year State Plan. Both groups identified housing, employment, and health care as the top three issues facing individuals with developmental disabilities in the next five years.
The results of these surveys can be found at http://www.mnddc.org/extra/customer-research.htm.
11. Quality Improvement: Stakeholder satisfaction surveys were disseminated, and results reviewed and analyzed to identify actionable items for the Five Year State Plan. Training, technical assistance, and coaching were provided regarding process improvements for Consumer Directed Community Services (CDCS). Business connections were pursued and established regarding individuals with autism spectrum disorder and employment and careers in digital technology fields.
GCDD staff/members received a total of 540 person hours of training 478 person hours of core learning on DD issues and 62 person hours of training on quality principles/Baldrige Framework.
12. Technical Assistance: During FFY 2011, the GCDD had 3,591 unique customer contacts about individual problems and 80 unique contacts about the Partners in Policymaking program. Considering repeat customers and including the online courses, a total of 15,852 contacts were made. A total of 1,063 compliments were received regarding personal assistance and support, timeliness and responsiveness, and specific products or services.
A total of 998 individuals used the Council's Facebook page and 8,196 Facebook visits were made.
A total of 92 individuals completed the stakeholder satisfaction survey; 140 compliments were received about leadership, planning, customer focus, and end results; and 103 compliments about specific products or services. On a 6-point scale, the GCDD's impact on choice and control was rated 5.75, impact on community participation was rated 5.75, and satisfaction with GCDD activities was rated 5.87.
Stakeholder survey comments and feedback about the GCDD included:
13. Presentations: During FFY 2011, a total of 16 presentations reached 1,490 people.
The following public policy issues were addressed at the federal level during FFY 2011:
METO, settlement negotiations, and the Jensen Settlement Agreement
Forum on Health Care Reform
ICF/DD deficiency reports and summary of citations for FY 2010
Technology accessibility recommendations
State budget deficit and budget reductions across programs and services for people with developmental disabilities
Residential size discussions with the Department of Human Services
Customer satisfaction report about managed care
Voting rights legislation
Budget bills regarding State Government, Health and Human Services, and Jobs and Economic Development
State government shutdown; "essential services" identified
Restrictive procedures law in public schools
PCA alternatives for individuals with disabilities losing PCA services
CADI waiver plan changes
Emergency planning for individuals with developmental disabilities and specifically individuals with ASD
Honoring Choices Minnesota and end of life conversations
Elimination of bias through CLE programs
The following public policy issues were addressed at the federal level during FFY 2011:
Reauthorization of the DD Act
Discretionary spending and FFY 2012 funding for Developmental Disabilities Councils
Reauthorization of the Rehabilitation Act
Department of Justice Olmstead Settlement Agreement with the State of Georgia
21st Century Accessibility Act
Reauthorization of the Combating Autism Act
Possible federal government shutdown
US Senate HELP Committee on Employment
Keeping All Students Safe Act
Policy paper on autism spectrum disorder and employment in the technology fields and replication of Specialisterne in the United States
Reauthorization of the Workforce Investment Act and subminimum wage issues
Defending Special Education Students and Families Act
Budget deal regarding debt ceiling issue
CMS Memo regarding use of video cameras in common areas in ICFs/DD
Super Committee, deficit reductions and efforts to protect Medicaid, Medicare, and Social Security
Parental consent for private insurance coverage for special education and related services
Affordable Care Act and prescription drugs or Medicare beneficiaries
During FFY 2011, our collaborative activities with the Minnesota Disability Law Center (P&A Agency) and/or the Institute on Community Integration (UCE) included:
Information and referral services
Partners in Policymaking
Self Advocates Minnesota (SAM) and self advocacy funding
Olmstead Committee and Rule 40 Committee – Committees will be established pursuant to the METO Settlement Agreement
Voting rights - The MDLC led the efforts to block a restriction on voter rights for anyone under guardianship during the 2011 Legislative session
Employment Forum featuring Temple Grandin - Over 1600 people attended and three major Minnesota companies (3M, Cargill, and Best Buy) served as co-sponsors; the Autism Society of Minnesota was lead agency
Resource center for positive behavioral supports and interventions to be housed at the UCEDD at the University of Minnesota
TPT production of Institutions to Independence
TPT public education series about end of life conversations, Honoring Choices Minnesota
Seclusion and restraints for children and adults in local school districts and state-operated programs
Abuse and neglect issues affecting people with autism spectrum disorder and other developmental disabilities
Disability and social justice issues that meet Minnesota Ethics and Diversity CLE requirements in cooperation with the Minnesota Chapter of the Federal Bar Association
Electroconvulsive Therapy (ECT) and proposed legislative changes regarding involuntary use
Minnesota Pro Se Project to enable greater access to the justice system by a wide range of poor people including minority groups, people with disabilities, and women of color
Subminimum wage issue
Emergency planning/emergency preparedness